Additional Resources
Additional Resources

Support & Resources

If you or your loved one have been diagnosed with NSCLC, you are not alone. These are some of the many resources, information hubs, and support services that can help you through your journey.

Resources for people with NSCLC

LUNGevity

The nation's largest lung cancer-focused nonprofit, committed to improving outcomes for people with lung cancer through research, education, policy and support.

Exon 20 Group

A multi-stakeholder international working group and coalition representing 48 countries, including 700 patients, care partners, thoracic oncologists and medical oncologists, industry partners, molecular profiling laboratories, and laboratories studying Exon 20 insertions. Providing customized patient navigation and research advocacy, clinical trials information services, peer-to-peer counseling through its Angel Buddy Program, and health equity advocacy.

GO2 Foundation

Founded by patients and survivors to save, extend, and improve the lives of people diagnosed with lung cancer. GO2 Foundation offers educational materials, emotional support, and resources.

Cancer.com

Created by Janssen in partnership with highly respected cancer organizations—like the American Cancer Society, Cancer Support Community, and CancerCare—to provide up-to-date resources and information for cancer patients and caregivers.

  • Advocacy Connector
    Use this tool to find organizations near you that can help with a wide range of different services, including financial support or transportation.
EGFR Resisters Group

A grassroots, patient-driven and patient-led community of over 2,500 members from 75+ countries. EGFR Registers Group has a closed Facebook group for members to connect and share best practices and communicate with the broader EGFR community through their website and monthly newsletter. Their goal is to improve outcomes by supporting patients and caregivers, increasing awareness and education for members, improving access to effective diagnosis and treatment, and accelerating and funding research that will improve outcomes for all those with EGFR-positive lung cancer.

American Cancer Society

Funds and conducts research, shares expert information, supports patients, and spreads the word about prevention in order to help cancer patients live longer—and better.

Cancer Support Community

Dedicated to ensuring that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.

CancerCare

Providing free, professional support services and information to help people manage the emotional, practical and financial challenges of cancer.

Prevent Cancer

Solely dedicated to saving lives through cancer prevention and early detection.

Resources for Caregivers
National Cancer Institute: Support for Caregivers of Cancer Patients

Advice and information for caregivers of friends or family members going through cancer treatment.

Johns Hopkins Medicine: Tips for Lung Cancer Caregivers

Tips and strategies to help become a successful caregiver for a person being treated for cancer.

American Cancer Society: Caregivers and Family

Things to think about if you are about to become a caregiver for a person with cancer.

CancerCare: Caregiving

Free, professional support services for caregivers and loved ones, as well as caregiving information and additional resources.

Clinical Research Study Resources

The following organizations and resources provide awareness and education around clinical research and participation.

The Center for Information and Study on Clinical Research Participation (CISCRP).

A nonprofit organization dedicated to educating and informing the public, patients, medical/research communities, the media, and policy makers about clinical research and the role each party plays in the process.

ClinicalTrials.gov

A Web-based resource that provides patients, their family members, and healthcare professionals with easy access to information on publicly and privately supported research studies (also known as clinical studies or clinical trials).

Research Includes Me

A site that educates and informs about diversity in Janssen clinical research studies. Janssen research studies include people of all genders, races, ages, and lifestyles in order to create a better future for all patients.

Janssen Resources, Support, and Information

Through the development of investigational medications, Janssen is committed to transforming the way cancer is researched and treated. We are currently exploring and evaluating investigational medications that may someday meet unmet patient needs across several solid tumour and blood cancer types.

Global Trial Finder

Find out more about some of the Janssen Oncology research studies that may still be accepting new participants. New Janssen studies may be activated at any time. Check back here frequently for updates.

My Trial Community TM

An informative web portal dedicated to improving the patient experience before, during and after a clinical research study. The site unlocks access to educational resources, and connecting people to our database of Janssen research studies, and study-specific tools for people already enrolled in a Janssen research study.

Cancer.com

Created by Janssen in partnership with cancer organizations—like the American Cancer Society, Cancer Support Community, and CancerCare—to provide up-to-date resources and information for cancer patients and caregivers.

  • Advocacy Connector
    Use this tool to find organizations near you that can help with a wide range of different services, including financial support or transportation.
Research Includes Me

A site that educates and informs about diversity in Janssen clinical research studies. Janssen research studies include people of all genders, races, ages, and lifestyles in order to create a better future for all patients.

At Janssen Oncology, we have a singular focus – the elimination of cancer. Inspired by today’s tremendous progress and emerging new ideas, we are driven by the enormous global unmet medical need in cancer.
Janssen Oncology

Learn more about Janssen’s ongoing efforts to transform the way cancer is managed and treated.

If you have EGFR-Positive Non-Small-Cell Lung Cancer, your journey may include a different path. 

The more we learn, the farther we can go.